Our bodies have an immune system that defends itself from germs and foreign invaders. Autoimmune disease is when the immune system malfunctions and attacks the organs and tissues of one’s own body. Many autoimmune disorders are more common in women than in men, and current efforts to treat autoimmunity rely on proper diagnoses which also differ. Yet, due to the chronic and complex nature of these diseases, many patients do not get the most adequate care. Proper treatment and patient care can only be successful if there are reliable ways of identifying what is different between the sexes and lifestyles, and adapting diagnostic approaches and treatments to these differences.

To help researchers get a complete picture of the illnesses they are trying to characterize, our research project aims to quantify the diagnosis, self-medication and treatments of both common and rare autoimmune and chronic diseases.

By filling in this survey, you will help us describe and put a number to the journeys many people go through, allowing future research to be successful in identification and treatment of these debilitating diseases and disorders.

For more information on the project and the researchers involved, as well as the consent and ethics parameters please visit: https://spoonie-community.netlify.app/

Content warning. Please note that the section on disease and diagnosis includes questions about pregnancy, and the mental health section includes questions about PTSD, which are marked with ***. While we would appreciate that input, the safety and wellbeing of participants is paramount so please be aware that you can skip these questions.

We thank you for your participation!

Loading... Loading...
You have selected an option that triggers this survey to end right now. To save your responses and end the survey, click the button below to do so. If you have selected the wrong option by accident and do not wish to leave the survey, you may click the other button below to continue, which will also remove the value of the option you just selected to allow you to enter it again and continue the survey.
The response has now been removed for the last question for which you selected a value. You may now enter a new response for that question and continue the survey.